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šŸŒˆ In the Tough Moments šŸ’ŖšŸ»

Writer: Devi Tippy ToesDevi Tippy Toes

Hello Sunday Peeps! Today is Sunday October 11, 2020. Well, I woke up this early morning (around 7:30 am) and felt better than I have felt in a very long time. Rigidity was completely gone and I felt like a human again! I had breakfast, took my meds and as always went back to bed. Once the side effects from Rytary subsided, I popped right out of bed and got ready to do a Zoom Pilates stretch class to help ease myself back into Pilates. It truly amazes me how much more flexible I am when there is absolutely no rigidity on my right side. I feel as though the last few weeks never even happened! I made it through the entire class and was so happy! I'm baaaaaaack (or so I thought). Right around 10:30 am, I felt that exhaustion coming on again. I took my second dose of Rytary at 11 and all I could think about was laying down again :( Needless to say, I was completely wiped out for the rest of the day. I had that feeling of apathy (a PD symptom). My interpretation re apathy means you just want to stay in the same spot forever and never move again. When I am in the midst of it, I don't want to talk to anyone or leave my house, even to go outside into my own backyard. Not a good feeling. Even though I feet guilty like I need to be doing something (like cleaning my house), I just can not rally for any reason except to get up and take my meds on time. Here's what I do when I feel like there is no hope. I watch one of my workout videos to remind myself of how far I have come since being diagnosed. I remind myself that tomorrow will be a much better day and that I will once again be active and strong. Unfortunately, it is these tough moments that truly define us.


It sucks. It really does not be able to control my brain and body. The silver lining.... I only feel apathetic when I am over medicated. Apathy stays with me until my medication is once again dialed in. Once it is, that "gloom and doom" state goes away fairly quickly (within a couple of days). When you feel down and out like this, you really have to dig deep and truly believe that it will get better. Whatever else you do, never give up! Keep on moving and breathe.....

šŸ™šŸ¼ We've got this!! šŸ‹šŸ»ā€ā™€ļø

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