Good afternoon peeps. Today is Friday October 16, 2020. So far so good, as they say. Amazingly, I had no side effects after taking Rytary first thing this morning! I did my usual Zoom Pilates Mat class at 9:30 am and it was great! I was able to do everything except one of the leg exercises which required me to put a stretchy band around my foot. Cecilia moved so fast after giving directions, that I just could not figure out how to put the stretchy band around my foot that quickly. Plus, we were on our hands and knees, so the band kept on slipping off of my foot. I was able to do the exercise, but without the stretchy band.
I took my second dose of Rytary at 10:30 am (right after class ended) and decided to go to Target to pick up a few things. I knew that I was taking a huge chance driving because of the fact that my body has been so out of control with side effects, soon after I take my Rytary. I do not have any idea why there were no side effects after my second dosage today, but I was so relieved and was actually able to enjoy myself while at Target!
My Friday was wonderful! I caught up on laundry, did the dishes and colored. I am so loving coloring. I wrote all about the perks of coloring in an earlier blog entry. But just to reiterate, coloring (for me) serves many purposes when dealing with PD. Before I found the right Dr., my concentration had gone from stellar (before PD), to scattered at best. I was uber impatient and could not focus on anything for more than about 10 seconds (on a good day). A perfect example of my impatience was when I "attempted" to water my gardens. Being outside in nature amongst the birds and flowers has always been one of my fav zen activities. Before PD, I showered my gardens with love and patience while watering. As my symptoms began to escalate, I found it very tedious work just to stand there watering. I was also very light headed and depressed at that time. At the same time, It was also very challenging to sit still, as my body was consumed with nervous energy. Coloring has helped me learn to refocus by staying on task and concentrating on the page at hand. My focus and patience didn't magically reappear the second I started coloring again. It came back slowly. Tiny miracles! Now I am very focused no matter what I am doing.
I am right handed and PD has tried to take full advantage of that fact. In the beginning, my hand became extremely weak and it seemed like it happened overnight. It felt like my right arm was no longer part of my body. I could barley pick up a crayon without dropping it, between weakness and tremors. My coloring was a bit scribbly because my hand was shaking quite a bit. I also had trouble keeping a crayon, marker etc... in my hand. I dropped everything on the ground a lot. Between patience, a fabulous Dr. and consistency on my part, my right hand and arm began to slowly build back strength. Now my right arm and hand are functioning correctly. My right side barely tremors anymore. My coloring now looks like an adult colored it, rather than looking like a child who is learning to stay in the lines. Not to mention, I have become quite creative in my color choices and use of pastels for blending colors. When I color, I put on my favorite music and sing my heart out. I have heard how PD aims to take my voice away. Well guess what PD? I am NOT playing! The most important thing that coloring does for me is to keep me zen.
The only blip of the day came after I took my 4:30 pm dose of Rytary. Within 25 minutes of taking it, my body started to tighten up. I am relieved that I was at home when the rigidity began so I could go and rest in bed. By 5:45 pm, it was time to use Inbrija, as the side effects of Rytary had taken residence in my body. Twenty minutes after inhaling Inbrija, I was great again! I spent the rest of the evening out in my garden watering. I am happily bewildered as to why I had no side effects until the evening. Have a most wonderful and healthy weekend and be safe!
🙏🏼 Creating Happy and Zen is Always a Good Idea 💓